Cystic Fibrosis

The Boozewatch team are proud to be an official supporter of
Cystic Fibrosis WA... promoting the CF message to the public of WA.


Cystic Fibrosis logoWhat is Cystic Fibrosis?

Cystic Fibrosis is the most common, recessive genetic condition in Australia. It causes a malfunction in the exocrine system. The secretions normally produced by the exocrine glands are thin and slippery, whereas in individuals affected by Cystic Fibrosis they are an abnormally thick and sticky consistency which makes it difficult to breathe, and to absorb food properly

 



About
Cystic Fibrosis WA

Cystic Fibrosis WA was established in the 1970’s by a group of concerned parents. In essence the work of Cystic Fibrosis WA remains the same today. Our mission is to contribute to the social, physical and emotional well-being of those individuals affected by Cystic Fibrosis and to assist in the promotion of research. We provide education, counselling, recreation and home care services. In recent years we have also expanded to provide home nursing and physiotherapy services to enable early discharge from hospital. Cystic Fibrosis WA is a not-for-profit organisation. It relies completely on the generosity of people in the community.


Facts & Figures about CYSTIC FIBROSIS

• CYSTIC FIBROSIS is Australia’s most common life threatening inherited disease.

• CYSTIC FIBROSIS affects all organs in the body except the brain

• CYSTIC FIBROSIS especially affects the lungs and pancreas by literally clogging them with thick sticky mucus.

• There is NO cure for CYSTIC FIBROSIS

• 3000 people in Australia have CYSTIC FIBROSIS

• 300 people in WA have CYSTIC FIBROSIS

• One person in 25 is a carrier of the faulty CYSTIC FIBROSIS gene

• 80,000 people in WA are carriers of the faulty CYSTIC FIBROSIS gene, which would fill Subiaco oval x 2

• One Million people are carriers of the faulty gene in Australia

• CYSTIC FIBROSIS is NOT contagious it is a genetic condition

• One person in Australia is born with CYSTIC FIBROSIS every 4 days

• If both parents are carriers of the CYSTIC FIBROSIS gene, there is a one in four chance that you will have a child with CYSTIC FIBROSIS

• Improved treatment and management of CYSTIC FIBROSIS now results in a much longer life expectancy. Since the 1960’s average life expectancy has risen from just over 5 yrs to 32.5 yrs today.

• The defective gene was found in 1989.

• 17 children were born in WA in 2005 with CYSTIC FIBROSIS

• 6 children were born in 2006 with CYSTIC FIBROSIS

• 5 children so far in 2007

Please contact
Cystic Fibrosis WA


 
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